I am a bit worried about the message to parents. This partly has to do with our history with our dear girl. I first noticed language delays (the most obvious of her challenges) at 18 months. Our pediatrician recommended giving her some time to catch up. Good friends of all stripe asked, "What are you worried about? Lot's of kids don't talk until they're two...she'll be fine." At two we got more hand patting and, "Speech Therapy doesn't really work at this age..." (False!) So we waited until she was three to find out about her language delay, and then another year and a half before we learned there was much more to the story. Good news: she is doing great now that we stepped up interventions on many levels. Bad news: Mom is forever haunted by not following the only known effective treatment for ASD of intense interventions happening by 2 years of age if possible. In the end, there are a lot of voices out there telling parents to let their kids "bloom" at their own pace, and in many, many cases this works out just fine. In our case there's no telling what would have happened if we had continued to just let it go. I now tell parents who ask me for advice that if they are concerned they should seek professional advice until they feel their questions are completely answered and addressed. In other words one shouldn't be laying awake at night wondering what's up with their kid. That is what I wish someone had told me. I don't think this is mutually exclusive to the rest of what Leo's parents typify: concerned, watchful, but patient and loving...the snugly tiger family portraits are the best. They all made it!
Wednesday, June 30, 2010
Book Review - Leo the Late Bloomer
I am a bit worried about the message to parents. This partly has to do with our history with our dear girl. I first noticed language delays (the most obvious of her challenges) at 18 months. Our pediatrician recommended giving her some time to catch up. Good friends of all stripe asked, "What are you worried about? Lot's of kids don't talk until they're two...she'll be fine." At two we got more hand patting and, "Speech Therapy doesn't really work at this age..." (False!) So we waited until she was three to find out about her language delay, and then another year and a half before we learned there was much more to the story. Good news: she is doing great now that we stepped up interventions on many levels. Bad news: Mom is forever haunted by not following the only known effective treatment for ASD of intense interventions happening by 2 years of age if possible. In the end, there are a lot of voices out there telling parents to let their kids "bloom" at their own pace, and in many, many cases this works out just fine. In our case there's no telling what would have happened if we had continued to just let it go. I now tell parents who ask me for advice that if they are concerned they should seek professional advice until they feel their questions are completely answered and addressed. In other words one shouldn't be laying awake at night wondering what's up with their kid. That is what I wish someone had told me. I don't think this is mutually exclusive to the rest of what Leo's parents typify: concerned, watchful, but patient and loving...the snugly tiger family portraits are the best. They all made it!
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Hello passing through via Katy's blog Bird on the the Street.
I am odd I wanted to keep my head in the sand for as long as they would let me.. I didn't want my son to be stuck with the 'A' word :0)
I think as parents we beat ourselves up too much. You found out about your daughter's diagnosis when you needed to find out about it. You have to believe that. I do it keeps me going
God is good and he carries us through.
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